Through the Eyes of A Child

Well, we’ve now made it through the heart cath.  After making multiple accommodations (for communicating progress and for her siblings), we attempted to sleep (11 pm when you have a 4:40 wake up just does not work!).
Driving in the dark was generally uneventful (other than the unusual amount of traffic for before 6 am).  We arrived, got checked in, and went up for the prep.  We were both able to talk to doctors and nurses AND answer questions for the intake.  Despite...

We haven’t updated this blog in awhile but that is a good thing!  It means things have been going along fairly well for her and she’s been extremely stable. We’ve been able to focus on other areas of our life. Tess has still been blogging  over at Circling...

Gosh, it’s been such a long time since we’ve posted to this blog.  It’s well overdue for an update, so here goes...
About a year ago, we got a letter in the mail.  Mantha’s cardiologist, who she had been seeing for 7 years – since we left the military, was moving to another state.  We had just seen him a month or two before, so we weren’t immediately due for an appointment...

Today marks the 12th anniversary of Mantha’s last open heart surgery.  She had the Completion Fontan at St. Christopher’s Hospital in Philadelphia.  It was the third stage surgery in what has been known as the “Norwood”.
She was  2 years 9 months and 6 days old.  She’d already been through the Stage 1 surgery (as well as the the extra trip to the OR four days later for another Open Heart Surgery due to complications) and the Stage 2 surgery.  She’d been through numerous...