The CLL Ranch

The CLL Ranch Blogspot. The landscape is vast, and much is obscured by mist. Some things are known, others knowable, perhaps still others, unknowable..

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Thecllranch.blogspot.com news digest

  • 11 years

    More side effects from trial

    I'm still on the GS-1101 (CAL-101) trial, but I've been having some problems.  I've developed cataracts in both of my eyes.  This can be related to steroid use.  I've been on budesonide for the severe diarrhea I've suffered in the past...

  • 11 years

    Latest on GS-1101 (CAL-101)

    I drove down to Stanford for an appointment with Dr. Coutre yesterday.  I think we were both surprised that my blood numbers looked better than they have been of late.  My WBC is back in the normal range.
    I also was subjected to an hour-and-a-half MRI, which showed slight regression of abdominal lymph nodes, which was also a surprise, since I've not noticed any diminution in the size of those nodes....

  • 11 years

    Failing CAL-101/GS-1101?

    I saw Dr. Coutre at Stanford Clinic yesterday, and was dismayed to find out my lymphocyte count has gone up to 20,000.  This is the highest it's been since I started on CAL-101, and may very well be a sign that I am failing the drug.  I think...

  • 11 years

    Steady as she goes

    Nothing much to report.  I go back to see Dr. Kipps in San Diego near the end of the year; I see Dr. Coutre next month.  I will have scans the end of the year, as well. 
    My abdominal nodes remain one of the biggest problems I have.  After going down nicely when I started on CAL-101 (GS-1101), they seem to have increased in size since my hospital ordeal at the beginning of the year.  I admit that some of the...

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