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Understanding and learning how to use Google to research a new diagnosis for yourself or your child is daunting, but it doesn’t have to be impossible!
Diagnosis Anxiety
During the first year of my daughter’s life, she received many diagnoses. Her body failed to thrive; she had severe reflux/GERD, projectile vomiting, aspiration, and Laryngomalacia. At three months old, she had a feeding tube placed....

I get asked a lot about my daughter’s tubes. What are they all for and what do they do? Two of them are feeding tubes, but the third tube is a cecostomy.
Most people have never heard of a cecostomy or they get it confused with a colostomy, which is completely different. To be fair, I had never heard of these tubes either, but over the years, I have become quite familiar with them and how they work!...

G-Tube changes can be so hard for my daughter who has 3 mini-one buttons (or tubes). She has a lot of anxiety around anything medical, whether it’s a simple procedure, getting a vaccine, or changing her G-Tube. Because of her anxiety, we have had to...

A while back I wrote about one of my daughter’s main diagnoses – Ehlers-Danlos Syndrome. Today, I want to write about a second main diagnosis she has called, Dysautonomia (POTS). Dysautonomia is a rare disease that usually affects women between the ages...