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Two weeks ago I spoke at the ‘International Perspectives on the Evaluation of PPI in Research’ conference which is taking place in Newcastle right this moment.
It was great to see so many people there – old and new friends. An engaged and lively audience. I am only sorry I could only stay the day....

The Patient Story
First they wouldn’t let us into the room.
Then we were allowed to sit at the back, but not say a word.

I suspect we all have moments when we will question the point of public involvement. Even those of us who are die-hard advocates. In the same way that the clergy seek to better understand their faith. Or scientists question Mark Walport.
Researchers who are at the beginning of their carers are more entitled than most to ask who, what, why, when, where? And they deserve a good answer including help, support and the opportunity for training....

Two former colleagues of mine – Rachael Litherland and Steve Milton – who run an incredible organisation called Innovations in Dementia have been awarded a Big Lottery Grant to run this new initiative which will provide people with dementia the opportunity...