Wilson Disease Association - Wilson Disease Association

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Wilsondisease.org news digest

  • 2 years

    Ultragenyx’s Wilson Disease Gene Therapy Program Update

    Ultragenyx is pleased to announce that the first patient has been dosed in the CYPRUS2+ study, a one-time intravenous (IV) infusion of UX701, an investigational gene therapy for the treatment of Wilson disease. Ultragenyx is sponsoring this global study...

  • 2 years

    GATEWAY IS NOW ACTIVELY ENROLLING AT 3 US CLINICAL SITES!

    #GATEWAY is a Vivet Therapeutics clinical trial for #WilsonDisease, taking place at several clinical sites across the United States and Europe.
    Learn more about this currently recruiting clinical trial and our #Gene Therapy, VTX-801:
    www.gatewaytrialwilsondisease.com...

  • 2 years

    Shipping Trientine to India through MAP International

    The WDA is no longer able to ship Trientine to India through MAP International due to Indian rules. If you have any questions please contact:
    Dr Seema Alam
    Prof Pediatric Hepatology

  • 2 years

    Wilson Disease Patient Registry Study

    The Wilson Disease Association (WDA) is not aware of any other multicenter, multinational Wilson Disease registry with prospective data collection in the world. The results of this research will benefit current and future WD patients globally.
    Learn more about this study:...

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