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Mission MSA. Living with MSA is a journey that requires courage, resilience, and a strong support network. Mission MSA is leading the charge to...

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Missionmsa.org news digest

  • 6 months

    The Not So Little Things

    By Jimmy Burt and Kathleen Romania
    Can you feel joy and sadness at the same time? It seems like, nowadays, every Christmas season I experience this duality of emotions. I think my wife and her family do too. And I’d imagine George, my father-in-law, does especially....

  • 6 months

    You Can Go Home Again — with Preparation

    By Alan J. Smally
    MSA Coalition Board of Directors Patient Representative
    Thomas Wolfe wrote “You Can’t Go Home Again,” but I thought maybe I could for Christmas. Although I was born up north, I had my first birthday in Sarasota, Florida, and lived there all through school. I have always considered Sarasota to be my home....

  • 7 months

    Navigating Emergency Room Visits and Hospital Stays

    By Cathy Chapman
    During the course of my journey with MSA, (I was diagnosed in 2012), going to the Emergency Room and having to stay overnight in the hospital was something I have had to experience multiple times. I want to share some tips that have been very helpful...

  • 7 months

    Christmas and MSA

    By Tom Tait
    Is this the last Christmas?
    How do you get through Christmas with your loved one who was just diagnosed with possible MSA. The question always on your mind is, “Will this be the last one?” That question will come and go along the MSA journey during many events. I understand it...

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