And Life Goes On...An Angel and a Rainbow

The Mother's Day I was pregnant with Dan, I looked at all the Mother's Day cards and couldn't wait for Dan to pick one out or create one in school.  He would be so proud of what he picked out or created.
I had 5 Mother's Day's with him.  5 glorious days - with the last one just before his diagnosis of Niemann-Pick....

I  have been fortunte to be on several launch teams.  I joined this book launch team for Beauty in the Broken Places because I could relate to Allison's journey into being an unexpected caregiver.  When I received my copy to read, I kept putting it off...

I'm sure almost everyone has heard that Barbara Bush died recently.  Have you read her obituary or any stories on her life?  I can tell you that I learned something the other day while reading her obituary.
She lost a daughter at age 3 to leukemia.
Yup.  One of the most respected First Lady's experienced child loss.  One article I read said that she refused to let anyone cry at her daughter's bedside while she was in the hospital.  Another article said they traveled the country looking for treatment...

Usually I post quite a few items related to Rare Disease Day, held on the last day of February.
I obviously didn't this year.  It wasn't for lack of wanting, it was for lack of knowing what to write.
One year I focused on those with Niemann-Pick Disease.  Another year, I focused on a bunch of rare diseases.  I've even included a list of some of the rare disease statistics.  Some of these articles are still some of my most popular....