AGSD-UK – Association for Glycogen Storage Disease (UK)
AGSD. Association for Glycogen Storage Disease (UK).
Read Agsd.org.uk news digest here: view the latest AGSD articles and content updates right away or get to their most visited pages. Agsd.org.uk is not yet rated by Alexa and its traffic estimate is unavailable. It seems that AGSD content is notably popular in United Kingdom. We haven’t detected security issues or inappropriate content on Agsd.org.uk and thus you can safely use it. Agsd.org.uk is hosted with Google LLC (United States) and its basic language is English.
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Language: English
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Best pages on Agsd.org.uk
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Tarui Disease (GSD7) - AGSD-UK
Visit the post for more.
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AGSD-UK – Association for Glycogen Storage Disease (UK)
Association for Glycogen Storage Disease (UK)
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Von Gierke Disease (GSD1) - AGSD-UK
Children with GSD1 are unable to release glucose from liver glycogen. If untreated this results in prolonged periods when their blood sugar level is too low. They become unwell in early childhood with...
Agsd.org.uk news digest
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5 years
AGSD-UK is seeking a Chief Executive Officer
If you are a senior manager looking for a rewarding move within the charity sector, please take a look a our job advert.
Closing date for applications: 5 Aprl 2019. -
5 years
World Record at Evelina GSD Family Day?
Cauliflower rice, hand-painted pencil cases, Gruffalo face-paint and step-counters were all taken home after the Evelina London Children’s Hospital GSD Family Day on Saturday 16th February.
Best of all though were new friendships, knowledge and reassurance for those affected by GSD.... -
5 years
FDA grants Breakthrough Therapy Designation to Amicus
A first for Pompe disease
Granted for AT-GAA, this is the first Breakthrough Therapy Designation (BTD) for a second generation Lysosomal Storage Disorder therapy, and the first for an investigational treatment in Pompe Disease.
AT-GAA is a novel treatment consisting of ATB200, a unique recombinant human acid alpha-glucosidase (rhGAA) enzyme with optimized carbohydrate structures, co-administered with AT2221, a pharmacological chaperone.... -
5 years
Cori the Supercat rides again!
Cori the Supercat has been on a mission
Cori the Supercat is a cat with lots of kitten friends. He supports and helps children with GSD3. Just this week he delivered one of his kitten toy friends to each and every child in the UK who has GSD3 (Cori disease)....
Domain history
| Web host: | Google LLC |
| Registrar: | Nominet UK |
| Registrant: | AGSD(UK) |
| Updated: | May 31, 2023 |
| Expires: | June 04, 2024 |
| Created: | June 04, 1999 |
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